Quality of life for adolescent with congenital heart diseases

Document Type : Original Article

Authors

1 B.Sc. of Nursing - Faculty of Nursing - Ain Shams University-Cairo-Egypt

2 Professor of community health Nursing Department - Faculty of Nursing - Ain Shams University-Cairo-Egypt.

3 Lecturer of community health Nursing Department - Faculty of Nursing - Ain Shams University-Cairo-Egypt.

Abstract

Background: Congenital heart disease is the most frequent form of major birth defect
in adolescents. Aim: This study aims to assess quality of life for adolescent with congenital
heart diseases. Design: A descriptive study. Sampling: A purposive sample comprised of
200 Adolescents diagnosed with congenital heart disease. Setting This study was conducted
in the outpatient cardiology clinics in Academy of Heart affiliated to Ain shams University
Hospitals. Tools of data collection: Tool I: included interviewing questionnaire, consisted of:
(I) Sociodemographic data, (II) Past and present Medical history, (III) adolescent’s
knowledge regarding CHD, (IV) health needs of adolescents with CHD, (V) Problems of
adolescents with CHD, (VI) quality of life for adolescent with CHD adopted from PedsQL™
Cardiac Module. Tool II: Medical Records review of the adolescents Results: This study
revealed that the mean age of studied adolescents was 14.85±2.82, about sixty-six percent of
them were males, about seventy percent of studied adolescents had satisfactory knowledge
about congenital heart disease. About fifty-seven percent of studied adolescents have
moderate health problems, and fifty-four percent of them have moderate QOL. Conclusion:
Upon the findings of the current study, the studied adolescents had possible needs related to
congenital heart disease, also had moderate health problems and moderate total quality of life,
which is being affected by their sociodemographic data, their knowledge about the disease,
their health needs. There is positive relation between the adolescents’ health Problems and
their quality of life. Also, there is positive relation between the adolescents’ socio-
demographic data (Age, educational level, residence and financial income) and their
knowledge about the congenital heart disease. Recommendation: continuous education for
all adolescents with CHD about their disease, how to improve their quality of life and about
their needs. Further detailed studies about adolescents with congenital heart disease and their
knowledge, needs, problems and quality of life.

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