Relationship between Knowledge of Patients with Thalassemia and their Quality of Life

Ramadan Korany, Nora; Sayed Ali, Hanan; Abd ELRahman Abd ELRahman, Asmaa; ELAshery Ashery, Reham

doi:10.21608/ejhc.2022.264205

Relationship between Knowledge of Patients with Thalassemia and their Quality of Life

Document Type : Original Article

Authors

¹ Demonstrator at Medical Surgical Nursing, Faculty of Nursing, Fayoum University

² Professor of Medical Surgical Nursing, Faculty of Nursing, Ain Shams University

³ Assistant Professor of Medical Surgical Nursing, Faculty of Nursing, Ain Shams University

⁴ Assist Professor of Medical Surgical Nursing, Faculty of Nursing, Fayoum University

10.21608/ejhc.2022.264205

Abstract

Background: Thalassemia is one of the most common genetic disorders worldwide that
associated with defective hemoglobin-chain synthesis. Clinical manifestations are diverse, ranging
from asymptomatic hypochromia and microcytosis to profound anemia. Aim of study: This study
aimed to assess the relationship between knowledge of patients with thalassemia and their quality of
life through: (1) Assessment of level of knowledge for adult patients suffering from thalassemia, (2)
Assessment of quality of life among adult patients suffering from thalassemia. Research design: A
descriptive exploratory research design was utilized to achieve the aim of the present study. Setting:
The current study was carried out in general medicine department at El Fayoum university hospital.
Subject: A purposive sample of 80 adult patients with thalassemia was included in this study. Tools
of data collection: First tool: Patient interview questionnaire. Second tool: World Health
Organization Quality of Life-BREF (WHOQOL-BREF) questionnaire. Results: The results of this
study revealed that more than two thirds of patients had satisfactory level of knowledge regarding
thalassemia, and more than three quarters of patients had poor quality of life. Conclusion: It was
concluded that there was no statistical significance relation between total level of knowledge of
patients with thalassemia and their quality of life. Recommendations: Regular follow up for
patients with thalassemia to evaluate their health conditions and to detect complications early.
Further studies are needed to assess factors affecting quality of life of patient with thalassemia

Keywords