Effect of Educational Program on Mothers’ Practices towards Caring for their Children Having Phenylketonuria

Document Type : Original Article

Authors

1 Department of Pediatric Nursing, Faculty of Nursing, Ain Shams University.

2 Medical Genetics Department, Faculty of Medicine, Ain Shams University

Abstract

 Background: Phenylketonuria (PKU) is an autosomal recessive inborn error of phenylalanine metabolism resulting from deficiency of phenylalanine hydroxylase (PAH). Aim: The objective of this study was to evaluate effect of educational program on mothers’ knowledge, practices and behavior towards caring for their children having Phenylketonuria. Methods: A pre/post quasi experimental study was conducted on 128 mothers. Settings: The study conducted at the Metabolic Clinic, Department of Medical Genetics, Faculty of Medicine, Ain Shams University. Tool: Pre designed interviewing questionnaire consists of 4 parts: Part 1: Personal characteristics of mothers. Part 2: Mothers’ knowledge about PKU. Part 3: Mothers’ Reported Practice about PKU. Part 4: Mothers Reported Behavior. Results: A difference was highly positive association between knowledge, reported practice, & reported behavior (.674 & .398) respectively. In addition, the highest positively association with total self-reported practice and reported behavior with r (.608). Conclusion: Current study concluded that an educational program affecting positively on mother's knowledge and practices and behavior. Recommendation: Provide continuous health education to mothers and their children with PKU to improve their adherence to therapeutic regimen 

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