Assessment of Awareness and Quality of Life for Patients with Parkinson’s Disease

Hassan Ahmed, Enas; Ibrahim Ahmed, Hanan; Fouad Melika, Ferial

doi:10.21608/ejhc.2025.454352

Assessment of Awareness and Quality of Life for Patients with Parkinson’s Disease

Document Type : Original Article

Authors

¹ M.S.N., Community Health Nursing, Head of Technical Nursing Institution, EL-Salam Specialized Hospital,

² Professor of Family &Community Health Nursing Faculty of Nursing Ain Shams University

³ Professor of Family &Community Health Nursing Faculty of Nursing Ain Shams University.

10.21608/ejhc.2025.454352

Abstract

Background: Patients with Parkinson’s disease have a progressive loss of function, which has an impact on the quality of life of patients. This study aims to assess awareness and quality of life for patients with Parkinson’s disease. Study Design: A descriptive research design was employed to achieve the study's objectives. Setting: The study was conducted in two settings, the outpatient neurology clinics at Martyr Ahmed Shawky Hospital for Geriatrics in Demerdash and at
EL Demerdash Hospital. Subjects: A purposive sample consisted of 104 male or female patients aged over 40 and diagnosed with Parkinson’s disease. Tools: Two tools were used for data collection. This tool consisted of three parts: part one, Socio-demographic characteristics; part two, to assess the effect of Parkinson's disease on patients’ awareness, and part three, Self-care practices of patients with Parkinson’s disease. Tool II: to assess the effect of Parkinson's disease on patients’ quality of life. Results: The study results showed that about half of patients with Parkinson’s’ disease were male, third of them were aged between 55 and 60 years, and second tool the most of the studied patients had unsatisfactory knowledge about Parkinson’s disease, while more than one third of them had a poor level of total reported practices toward self-care. which led to about two-thirds of patients with Parkinson’s disease having a poor level of total quality of life, while few of them had a good level. Conclusion: There was a highly significant relationship between total quality of life and patients’ knowledge related to Parkinson’s disease, and while there was a highly significant relation between total quality of life and total reported patients’ practices related to self-care, Recommendation: Health educational programs for patients with Parkinson’s disease should be conducted at outpatient clinics to raise their awareness of Parkinson’s disease.

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