Quality of life among Children with Congenital Heart Diseases

Document Type : Original Article

Authors

1 Pediatric Health nursing, Faculty of Nursing- Helwan University, Egypt.

2 Pediatric Health nursing,Faculty of Nursing, Ain Shams University, Egypt.

Abstract

Background:Congenital Heart Diseases (CHDs) are the most common cause of major
congenital anomalies which are one of the major causes of morbidity and mortality among children
in the world that substantially reduce the quality of life(QOL) of children. Aim: the current study
aimedto assess quality of life among children with congenital heart diseases. Research design: a
descriptive research design was used. Setting: the study was conducted at inpatient and outpatient
department of the Academic Heart affiliated to Ain-Shams University. Sample: the study involved
68 children suffering from congenital heart diseases. Tool: consists of two tools: I: predesigned
questionnaire sheet, II: Quality of life scale. Results: More than one third of studied children were
isolated ventricular septal defect. More than one third of studied mothers weren’t aware about
causes of congenital heart diseases. More than half of studied mothers weren’t aware about
complications. Less than two thirds of studied children had poor quality of life. Conclusion: the
present study concluded that there were a statistical significant deferences between their total
practice and their total knowledge regarding children with congenital heart diseases. And there
were a statistical significant deferences between their total quality of life and their total practice and
their total knowledge regarding congenital heart diseases Recommend to: continuous health
education to mothers regarding congenital heart diseases,complications, management plan and
provision a rehabilitation program for children with congenital heart diseases to improve quality of
life.

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