Phenylketoneuria is an autosomal recessive disorder and cause irreversible brain damage if untreated. Aim: This study aimed to assess mothers care for children having Phenylketoneuria through assessing the mothers’ knowledge, self-reported practice and coping patterns toward their children with PKU. Design: A descriptive study. Sampling: A purposive sample comprised of 94 mothers accompying children with PKU. Setting: This study was conducted at Specialized Genetic Outpatient Clinic, Children’s Hospital affiliated to Ain Shams University Hospital. Data collection tool: 1st tool: Interviewing Questionnaire Format to assess socio- demographic data of the study children and their mothers, medical history of children with PKU, mothers’ knowledge about PKU, assessment of children’ health needs and problems, 2 nd tool: Mothers Reported Practice Format related to care of their children with PKU, as diet management and follow up for growth and development as weight, height. 3 rd tool: Psychometric Assessment for mothers as Coping Pattern Scale, Beck Depression Inventory and State-Trait Anxiety Inventory. Results: This study revealed that above half of studied children’s were females, it ranged from birth to more than 9 years with a mean age of 4.45 ± 2.07 years, the mean age of studied mothers was (32.26 ± 4.2 years), Conclusion: about more than half of mothers had poor knowledge about PKU. As well more than one tenth of the mothers had poor total reported practice. There is a significant correlation between mothers’ knowledge, practice and their caring roles, anxiety and depression. Recommendation: Continuous health teaching to children and their caregivers regarding PKU.
A.K., E., S.S., A., O.A., K., & I.A, M. (2020). Assessment of Mothers Care toward their Children having Phenylketonuria. Egyptian Journal of Health Care, 11(2), 241-254. doi: 10.21608/ejhc.2020.95138
MLA
Elsayed, A.K.; AlRafay, S.S.; Khalifa, O.A.; Mohamed, I.A. "Assessment of Mothers Care toward their Children having Phenylketonuria". Egyptian Journal of Health Care, 11, 2, 2020, 241-254. doi: 10.21608/ejhc.2020.95138
HARVARD
A.K., E., S.S., A., O.A., K., I.A, M. (2020). 'Assessment of Mothers Care toward their Children having Phenylketonuria', Egyptian Journal of Health Care, 11(2), pp. 241-254. doi: 10.21608/ejhc.2020.95138
VANCOUVER
A.K., E., S.S., A., O.A., K., I.A, M. Assessment of Mothers Care toward their Children having Phenylketonuria. Egyptian Journal of Health Care, 2020; 11(2): 241-254. doi: 10.21608/ejhc.2020.95138
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