Effect of Educational Intervention on Psychological Well-being and Coping of Mothers Having Children with Down Syndrome

Document Type : Original Article

Authors

1 Lecturer at Department of Community Health Nursing, Faculty of Nursing, Port-Said University

2 Lecturer of Community Health Nursing Department, Faculty of Nursing, Mansoura University, Egypt

3 Assistant Professor of Psychiatric and Mental Health Nursing Department, Faculty of Nursing Assiut University

4 Lecturer in Psychiatric Nursing and Mental Health, Faculty of Nursing, South Valley University

5 Assistant professor of Community Health Nursing, Faculty of Nursing, Mansoura University

6 Lecturer of Community Health Nursing, Department, Faculty of Nursing, Mansoura University, Egypt

Abstract

Background: Mothers of children with Down syndrome (DS) experience stress, they require
the use of effective coping strategies help them to cope with this stress to psychological well-being
and regulate their emotions. Aim: To evaluate the effect of educational intervention on the
psychological well-being and coping of mothers having children with Down syndrome. Subjects
and method: Design: A quasi-experimental research design was used to achieve the aim of this
study. Setting: the study was carried out at two special needs schools in Mansoura City (ALtarbih
ELfikria). Subjects: A purposive sample of 100 mothers and their children with Down syndrome
were selected from the previous setting. Tools: Tool (I) structured interviewing questionnaire,
which included four parts: Part I: demographic characteristics of mothers, children, history of DS
child, and mother’s knowledge regarding DS, Tool (II): Ryff’s Psychological well-being scale
(1989), Tool (III): mothers' needs scale, and Tool (IV): mothers' coping scale. Results: The study's
findings revealed that nearly two-thirds of mothers of children with DS had psychological well-
being less than usual pre- educational intervention compared to more than half of mothers of
children with DS had psychological well-being better than usual post- educational intervention.
There was a highly statistically significant difference between the pre- educational intervention and
post- educational intervention regarding mothers' knowledge and practices about Down syndrome.
Three-fifths of mothers had negative coping patterns, with more than three-quarters of them never
being able to manage their children's disabilities. The most essential needs for mothers were
economic needs. Conclusion: The educational intervention was effective in improving the
psychological well-being and coping of mothers having children with Down syndrome.
Recommendations: The study suggested organized educational programs are needed to improve
mothers' knowledge, psychological well-being, and coping with Down syndrome.

Keywords