Effect of Online Education on Mothers' Knowledge and Practice regarding Caring for Children with Phenylketonuria

Ramadan Esmail Magor, Nagwa; Farouk Shalaby, Silvia; Adel Mohammed, Yasmen; Saeed Abdelsamea Attia, Rasha; Mohamed Ahmed Ayed, Manal

doi:10.21608/ejhc.2023.293131

Effect of Online Education on Mothers' Knowledge and Practice regarding Caring for Children with Phenylketonuria

Document Type : Original Article

Authors

¹ Lecturer of Pediatric Nursing, Faculty of Nursing, Tanta University, Egypt

² Assistant professor of Public Health and Community Medicine, Faculty of Medicine, Cairo University

³ Lecturer of Pediatric Nursing, Faculty of Nursing, Mirs University for Science and Technology, Egypt

⁴ Lecturer of Pediatric Nursing, Faculty of Nursing, Damietta University

⁵ Assistant Professor of Pediatric Nursing, Faculty of Nursing, Sohag University, Egypt

10.21608/ejhc.2023.293131

Abstract

Background: Phenylalanine hydroxylase activity is deficient in phenylketonuria. Phenylketonuria is an inherited metabolic disease of protein metabolism. Aim: The study aimed to determine the effect of online education on mothers' knowledge and practice regarding caring for children with phenylketonuria. Design: A quasi-experimental research design was used in this study (pre/post-test). Setting: The research was carried out in a genetic counselling clinic in a basic health care facility affiliated with the Ministry of Health in Sohag City. Sample: A non-probability purposive sampling technique included 50 mothers and their children with Phenylketonuria. Tools: Two tools were used: Tool (I) Self-administering questionnaire included Part (1): Demographic data of the mothers and their children, Part (2): Children's medical history, and Part (3): Mothers' knowledge about phenylketonuria, and Tool (II): Mothers' reported practice about phenylketonuria. Results: The study indicated that there was a statistically significant improvement in mothers' knowledge and reported practices regarding caring for children with phenylketonuria post- online education than pre- online education. A statistically significant correlation was observed between mothers' knowledge and reported practices post- online education. Conclusion: The study results concluded that online education had positive effects on improving mothers' knowledge and practice in caring for their children with phenylketonuria. Recommendations: Online education for mothers regarding caring for children with phenylketonuria is recommended to increase their knowledge and reported practices.

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